Life After Diagnosis
Kay Redfield Jamison is a Professor of Psychiatry at Johns Hopkins School of Medicine, where she also do-directs the Mood Center. Once a manic depressive herself, she is now a prominent expert on mental health, suicide, and creativity.
Her books include Touched With Fire: Manic Depressive Illness and the Artistic Temperament; An Unquiet Mind; Exuberance: A Passion For Life; and Nothing Was The Same.
Question: What was your experience of living with your husband after his diagnosis?
Kay Redfield Jamison: I think that one of the many advantages of death accruing over a long period of time, in the case of my husband and with many people who have cancer or other chronic illnesses, is that you do have time to meet a lot of other people who are going through similar situations and one of the great delights of our life actually was sitting around in labs waiting for the results of tests and talking to other people who were waiting to find out whether their cancer numbers were going in the right direction or not.
I think it makes you very aware of just the acute pain and anxiety that people do go through. What I had not been aware of and what I was very interested in writing about was how extraordinary grief is. I mean people talk about grief as if it's kind of an unremittingly awful thing, and it is. It is painful, but it's a very, very interesting sort of thing to go through and it really helps you out. At the end of the day, it gets you through because you have to reform your relationship and you have to figure out a way of getting to the future. And grief does that. I was interested in the difference between that and depression because I had gone through depression and I thought that I might well get depressed again after Richard's death and I didn't. The similarities were interesting but the differences were to me far more interesting.
Question: Is it possible to live a full life after a fatal diagnosis?
Kay Redfield Jamison: Well I think first of all I think most people do in a funny sort of way. I think one of the things that you're not prepared for, I was not prepared for, was how exhausting it is to be the person -- I was the only person who took care of my husband and I loved being able to spend time with him and so forth. But it was tiring and I'm like a high voltage, high energy person and it was exhausting. I think that that's a really unfortunate side of that, but we counted ourselves blessed to have the time together actually. When you look at people who lose someone through a heart attack or suicide or an accident and they haven't the time to spend, we were very blessed in that respect and I don't think either of us ever took that for granted. And also we both were really busy, Richard in particular was well-known scientist and was always going off to meetings and giving papers and so forth. We both were zipping around like crazed weasels. At some point we just couldn't and didn't and wouldn't do that anymore and as a result we had just a lot of time to sit around and read together and talk and go out to movies and be with friends. It's not like he was sick all the time; just gradually make incremental changes in how he was able to get around.
But it was, it was for the most part delightful. We actually had fun. You don't lose the person; that's not true for people who have dementing illnesses or people who progressively really get so weak. But in our case, we were lucky he was able to enjoy life actually until very near the end.
Question: What was the last day with your husband like?
Kay Redfield Jamison: I think we both knew that it wasn't going to be very long before he died; that was clear from all the scans and his general deteriorating health, but we didn't have a sense that it was going to be that soon. We did. We had a wonderful last day; we had a room where we just sat and read. I used to -- he was very dyslexic and so I used to read to him. We just did. We talked and we had very meaningful talk about -- he was a scientist and he was concerned about how he would never understand the science of the disease schizophrenia that he had studied all of his life. He would never know what caused it, he would never know the treatments that came out, he'd never know the genetics of it. And this was for a scientist who's very curious, very painful for him and it was as close to seeing him very upset about things as I'd seen him, and yet after talking about it and so forth and talking about the nature of science and medicine.
And somehow it came back to being his usual actually quiet, optimistic self and it was a wonderful time we had. Yeah. I wouldn't trade that for anything in the world.
Question: Were you able to say goodbye?
Kay Redfield Jamison: Not really. Not anything other than a sort of in a symbolic sense because he got very sick, very fast and was in the ICU and unconscious, so there was no way of saying good-bye to him. I said certainly said good night to him the last night that he was in the hospital, but I didn't think he was going to die and he didn't think he was going to die. So there was no kind of final thing. When he did die and when I had the—all of life support removed from him, yeah, those kind of incredible private moments that you don't know about until you go through them of saying that kind of final farewell to someone you've been with for 20 years. It's—but I think again—and it was awful, it was painful and sad, but it was also the sort of thing—there is an intimacy to dying that he and I used to talk about. That you just don't know until you're with somebody. You have this incredible closeness and vulnerability and sense of whether or not there are going to be arguments or discussions here that are fought, we are going to take care of one another.
Recorded On: September 30, 2009
Kay Redfield Jamison discusses how she and her late husband found profound delight in his final years as well as the commanding power of the grieving process.
Why do people with bigger hands have a better vocabulary? That's one question deep learning can't answer.
- Did you know that people with bigger hands have larger vocabularies?
- While that's actually true, it's not a causal relationship. This pattern exists because adults tend know more words than kids. It's a correlation, explains NYU professor Gary Marcus.
- Deep learning struggles with how to perceive causal relationships. If given the data on hand size and vocabulary size, a deep learning system might only be able to see the correlation, but wouldn't be able to answer the 'why?' of it.
One of the scientists with the Viking missions says yes.
- A former NASA consultant believe his experiments on the Viking 1 and 2 landers proved the existence of living microorganisms on Mars
- Because of other conflicting data, his experiments' results have been largely discarded.
- Though other subsequent evidence supports their findings, he says NASA has been frustratingly disinterested in following up.
Gilbert V. Levin is clearly aggravated with NASA, frustrated by the agency's apparent unwillingness to acknowledge what he considers a fact: That NASA has had dispositive proof of living microorganisms on Mars since 1976, and a great deal of additional evidence since then. Levin is no conspiracy theorist, either. He's an engineer, a respected inventor, founder of scientific-research company Spherix, and a participant in that 1976 NASA mission. He's written an opinion piece in Scientific American that asks why NASA won't follow up on what he believes they should already know.
Image source: NASA/JPL
Sunset at the Viking 1 site
As the developer of methods for rapidly detecting and identifying microorganisms, Levin took part in the Labeled Release (LR) experiment landed on Mars by NASA's Viking 1 and 2.
At both landing sites, the Vikings picked up samples of Mars soil, treating each with a drop of a dilute nutrient solution. This solution was tagged with radioactive carbon-14, and so if there were any microorganisms in the samples, they would metabolize it. This would lead to the production of radioactive carbon or radioactive methane. Sensors were positioned above the soil samples to detect the presence of either as signifiers of life.
At both landing sites, four positive indications of life were recorded, backed up by five controls. As a guarantee, the samples were then heated to 160°, hot enough to kill any living organisms in the soil, and then tested again. No further indicators of life were detected.
According to many, including Levin, had this test been performed on Earth, there would have been no doubt that life had been found. In fact, parallel control tests were performed on Earth on two samples known to be lifeless, one from the Moon and one from Iceland's volcanic Surtsey island, and no life was indicated.
However, on Mars, another experiment, a search for organic molecules, had been performed prior to the LR test and found nothing, leaving NASA in doubt regarding the results of the LR experiment, and concluding, according to Levin, that they'd found something imitating life, but not life itself. From there, notes Levin, "Inexplicably, over the 43 years since Viking, none of NASA's subsequent Mars landers has carried a life detection instrument to follow up on these exciting results."
Image source: NASA
A thin coating of water ice on the rocks and soil photographed by Viking 2
Levin presents in his opinion piece 17 discoveries by subsequent Mars landers that support the results of the LR experiment. Among these:
- Surface water sufficient to sustain microorganisms has been found on the red planet by Viking, Pathfinder, Phoenix and Curiosity.
- The excess of carbon-13 over carbon-12 in the Martian atmosphere indicates biological activity since organisms prefer ingesting carbon-12.
- Mars' CO2should long ago have been converted to CO by the sun's UV light, but CO2 is being regenerated, possibly by microorganisms as happens on Earth.
- Ghost-like moving lights, resembling Earth's will-O'-the-wisps produced by spontaneous ignition of methane, have been seen and recorded on the Martian surface.
- "No factor inimical to life has been found on Mars." This is a direct rebuttal of NASA's claim cited above.
Image source: NASA
A technician checks the soil sampler of a Viking lander.
By 1997, Levin was convinced that NASA was wrong and set out to publish followup research supporting his conclusion. It took nearly 20 years to find a venue, he believes due to his controversial certainty that the LR experiment did indeed find life on Mars.
Levin tells phys.org, "Since I first concluded that the LR had detected life (in 1997), major juried journals had refused our publications. I and my co-Experimenter, Dr. Patricia Ann Straat, then published mainly in the astrobiology section of the SPIE Proceedings, after presenting the papers at the annual SPIE conventions. Though these were invited papers, they were largely ignored by the bulk of astrobiologists in their publications." (Staat is the author of To Mars with Love, about her experience as co-experimenter with Levin for the LR experiments.)
Finally, he and Straat decided to craft a paper that answers every objection anyone ever had to their earlier versions, finally publishing it in Astrobiology's October 2016 issue. "You may not agree with the conclusion," he says, "but you cannot disparage the steps leading there. You can say only that the steps are insufficient. But, to us, that seems a tenuous defense, since no one would refute these results had they been obtained on Earth."
Nonetheless, NASA's seeming reluctance to address the LR experiment's finding remains an issue for Levin. He and Straat have petitioned NASA to send a new LR test to the red planets, but, alas, Levin reports that "NASA has already announced that its 2020 Mars lander will not contain a life-detection test."
Scientists discover the inner workings of an effect that will lead to a new generation of devices.
- Researchers discover a method of extracting previously unavailable information from superconductors.
- The study builds on a 19th-century discovery by physicist Edward Hall.
- The research promises to lead to a new generation of semiconductor materials and devices.