What I learned about disability and infanticide from Peter Singer

In the 1970s, the Australian moral philosopher Peter Singer began to argue that it is ethical to give parents the option to euthanise infants with disabilities.

In the 1970s, the Australian moral philosopher Peter Singer, perhaps best-known for his book Animal Liberation (1975), began to argue that it is ethical to give parents the option (in consultation with doctors) to euthanise infants with disabilities. He mostly, but not exclusively, discussed severe forms of disabilities such as spina bifida or anencephaly. In Practical Ethics (1979), Singer explains that the value of a life should be based on traits such as rationality, autonomy and self-consciousness. ‘Defective infants lack these characteristics,’ he wrote. ‘Killing them, therefore, cannot be equated with killing normal human beings, or any other self-conscious beings.’


The thought of killing disabled babies is especially dangerous because the concept of disability often functions as a mere cloak, thrown over much uglier hatreds. In ‘Disability and the Justification of Inequality in American History’ (2001), the historian Douglas Baynton points out that African-American enslavement was justified through disability models: there was a supposition that African Americans suffered from a number of medical conditions that were understood to make them unable to care for themselves. Until 1973, homosexuality was a psychological disorder justified in the Diagnostic and Statistical Manual of Mental Disorders; the current edition, the DSM-5, still considers transgender people disabled.

Singer generally frames severe physical disabilities through a medical lens. His ideas chafe against models of the disabled as a minority group. To Singer, severe disability is more a problem to be solved than a difference to be embraced and accommodated.

For years, I thought Singer was morally bankrupt. I grew up in a family with hereditary deafness, and though deafness is far from the type of disability that Singer was focusing on (with some arguing that it’s not a disability at all), I still recognised an idea that the disability community has faced for centuries: that people with disabilities are fundamentally less entitled to their rights – even their lives. Singer’s ideas stood in opposition to my core belief that the disabled body is created largely through a lack of accommodation, and that people with disabilities are different perhaps, but not less.

While most of Singer’s other writings seemed so thoughtful, so compassionate, his writings on disabled children seemed to be approaching the slippery slope toward ethnocide – the intentional and systematic destruction of cultures, like the Deaf culture that my own family embraced. I had never been able to shake what he was saying about the disabled – and I wanted to know more: what he thought today; if his ideas had ever shifted; and, mostly, how he could believe so strongly in something that seemed so out of sync with his reverence for life.

This past winter, I reached out to Singer to learn more.

I was nervous to talk with him, even over the blurry, jumpy distance of Skype, but I had no reason to be. Though his ideas felt abrasive, even violent, to me, he took opposition with thoughtful consideration. And as we talked, I began to wonder if I hated his ideas because they poked at sore spots in my worldview, exposing its vulnerabilities.

Singer resists the idea that disability is mere difference; there is suffering involved, he says, and not only of the social variety. ‘I don’t think the idea that it’s better to be able rather than disabled is in itself a prejudice,’ he told me. ‘To see that as akin to racism or sexism is a mistake.’ He argues that if it weren’t preferable to be able-bodied, we wouldn’t have a problem with pregnant women taking drugs or drinking heavily, that avoiding disability would have to also be seen as prejudicial. It isn’t, and Singer maintains that it shouldn’t be.

Instead, Singer maintains that disability, unlike race or gender, comes with intrinsic suffering – sometimes great enough that it is more compassionate to end the lives of infants than to force them to live in pain. Over the years since he first began discussing this proposal, Singer has had to contend with studies showing that quality-of-life assessments of people with disabilities are not that different from those of able-bodied people – a fact that could grossly undermine his argument of alleviating suffering. While he has found those studies compelling, he maintains that it’s not fair to allow them to speak for those too severely disabled to respond to such a survey. (In general, he doesn’t buy the idea that people with vastly different disabilities ought to be speaking to each other’s experiences.)

Disturbingly, though he focuses mostly on severe disabilities, he also resists putting strict parameters around which disabilities would qualify for infanticide. ‘Look,’ he told me, ‘I don’t think it’s for me to tell parents [that] if your child is like this you are to end the child’s life, and if the child is like that you ought not to.’ Instead, he considers how class, family, community, not to mention regional and national support, shape the potential life of the child.

Particularly surprising was how Singer’s responses often revealed under-investigated issues in the disability movement’s rhetoric: the idea that class and location could have tremendous impact on a parent’s ability to raise a child with a disability, for instance, or that some are so disabled that they have no ability to speak to their own quality of life. The way that Singer’s ideas are often engaged with exhibits an intellectual laziness that tosses these issues dangerously aside.

Singer has not focused on infanticide for decades, but his ideas still ache in the disability world, like a wound that won’t heal. Singer is still deeply entrenched in questions about the hierarchy of lives, and his ideas about the inferiority of many people with disabilities – and the dangers that those ideas imply – are as pertinent today as they’ve ever been. The epidemic of spina bifida that spurred his arguments has now passed, but the larger questions he poses are still central to questions of prejudice and equality in the disability community. This makes it hard to sort through Singer. His arguments are built intricately and beautifully, like a perfect mathematics equation, but at their core beats a single assertion, one that is still too difficult to concede: that this group of human beings aren’t really people. That’s the pain that obscures the rest.

Katie Booth

--

This article was originally published at Aeon and has been republished under Creative Commons.

3D printing might save your life one day. It's transforming medicine and health care.

What can 3D printing do for medicine? The "sky is the limit," says Northwell Health researcher Dr. Todd Goldstein.

Northwell Health
Sponsored by Northwell Health
  • Medical professionals are currently using 3D printers to create prosthetics and patient-specific organ models that doctors can use to prepare for surgery.
  • Eventually, scientists hope to print patient-specific organs that can be transplanted safely into the human body.
  • Northwell Health, New York State's largest health care provider, is pioneering 3D printing in medicine in three key ways.
Keep reading Show less

Are people getting smarter or dumber? Yes.

The Flynn effect shows people have gotten smarter, but some research claims those IQ gains are regressing. Can both be right?

Surprising Science
  • Many countries made incredible gains in IQ scores during the 20th century, averaging three IQ points per decade.
  • Studies out of Europe have shown a reversal of this trend.
  • Such declines are not universal, and researchers remain unsure of what is causing them.
Keep reading Show less

Scientists turn nuclear waste into diamond batteries

They'll reportedly last for thousands of years. This technology may someday power spacecraft, satellites, high-flying drones, and pacemakers.

Woman looking at a diamond.
popular

Nuclear energy is carbon free, which makes it an attractive and practical alternative to fossil fuels, as it doesn't contribute to global warming. We also have the infrastructure for it already in place. It's nuclear waste that makes fission bad for the environment. And it lasts for so long, some isotopes for thousands of years. Nuclear fuel is comprised of ceramic pellets of uranium-235 placed within metal rods. After fission takes place, two radioactive isotopes are left over: cesium-137 and strontium-90.

Keep reading Show less

Want to forge stronger social bonds? Bring beer.

New research shows that a healthy supply of locally-sourced beer helped maintain Wari civilization for 500 years.

Culture & Religion
  • A new analysis of an ancient Wari brewery suggests chicha helped maintain the civilization's social capital for hundreds of years.
  • Civilizations throughout the ancient world used alcoholic drinks to signify kinship, hospitality, and social cohesion.
  • The researchers hope their findings will remind us of the importance in reaffirming social institutions and sharing cultural practices — even if over coffee or tea.

Beer is history's happiest accident. Though the discovery probably happened much earlier, our earliest evidence for beer dates back roughly 13,000 years ago. Around this time, the people of the Fertile Crescent had begun to gather grains as a food source and learned that if they moistened them, they could release their sweetness to create a gruel much tastier than the grains themselves.

One day a curious — or perhaps tightfisted — hunter-gatherer hid his gruel away for a safekeeping. When he returned, he found the bowl giving off a tangy odor. Not one to waste a meal, he ate it anyway and enjoyed an unexpected, though not unpleasant, sensation of ease. By pure happenstance, this ancestor stumbled upon brewing.

That's one possible origin story, but we know that our ancestors learned to control the process, and beer took a central role in Fertile Crescent civilizations — so central that Professor Patrick McGovern, a biomolecular archaeologist at the University of Pennsylvania, argues that beer, not bread, incentivized hunter-gatherers to relinquish their nomadic ways.

Beer may also be proof of a God who wants us to be happy (Dionysus?), because the beverage* would be independently rediscovered by peoples across the ancient world, including those in China and South America.

One such peoples, the pre-Inca Wari Civilization, made beer, specifically chicha de molle, a critical component in their religious and cultural ceremonies. In fact, a study published in Sustainability in April argues that the role was so important that beer helped keep Wari civilization intact for 500 years.

Brewing social capital

Twenty years ago, a team of archaeologists with the Field Museum of Natural History, Chicago, discovered a brewery in Cerro Baúl, a mesa in southern Peru that served as an ancient Wari outpost. The brewery contained original equipment, clay storage vessels, and compartments for milling, boiling, and fermentation.

The team recently analyzed these on-site vessels to uncover the secrets of the Wari brewing process. Removing tiny amounts of material found in the spaces between the clay, they were able to reconstruct the molecules of the thousand-year-old drink. They then worked alongside Peruvian brewers to recreate the original brewing process.**

Their molecular analysis revealed several key features of the beer: The clay used to make the vessels came from a nearby site; many of the beer's ingredients, such as molle berries, are drought resistant; and though alcoholic, the beer only kept for about a week.

These details suggest that Cerro Baúl maintained a steady supply of chicha, limited by neither trade nor fair weather, and became a central hub for anyone wishing to partake. The Wari would likely make such trips during times of festivals and religious ceremonies. Social elites would consume chicha in vessels shaped like Wari gods and leaders as part of rituals attesting to social norms and a shared cultural mythology and heritage.

"People would have come into this site, in these festive moments, in order to recreate and reaffirm their affiliation with these Wari lords and maybe bring tribute and pledge loyalty to the Wari state," Ryan Williams, lead author and head of anthropology at the Field Museum, said in a release. "We think these institutions of brewing and then serving the beer really formed a unity among these populations. It kept people together."

The Wari civilization was spread over a vast area of rain forests and highlands. In a time when news traveled at the speed of a llama, such distinct and distant geography could easily have fractured the Wari civilization into competing locales.

Instead, the researchers argue, these festive gatherings (aided by the promise of beer) strengthened social capital enough to maintain a healthy national unity. This helped the Wari civilization last from 600 to 1100 CE, an impressive run for a historic civilization.

Bringing people together (since 10,000 BCE)

A Mesopotamian cylinder seal shows people drinking beer through long reed straws. Image source: Metropolitan Museum of Art.

Of course, the Wari weren't the first civilization to use beer to reaffirm bonds and maintain their social fabric. Returning to the Fertile Crescent, Sumerians regarded beer as a hallmark of their civilization.

The Sumerian Epic of Gilgamesh tells of the adventures of the titular hero and his friend Enkidu. Enkidu beings as a savage living in the wilderness, but a young woman introduces him to the ways of civilization. That orientation begins with food and beer:

"They placed food in front of him,
They placed beer in front of him,
Enkidu knew nothing about eating bread for food,
And of drinking beer he had not been taught.
The young woman spoke Enkidu, saying:
"Eat the food, Enkidu, it is the way one lives.
Drink the beer, as is the custom of the land."
Enkidu ate the food until he was sated,
He drank the beer — seven jugs! — and became expansive
and sang with joy.
He was elated and his face glowed.
He splashed his shaggy body with water
and rubbed himself with oil, and turned into a human
."

Tom Standage, who recounts this scene in his History of the World in 6 Glasses, writes: "The Mesopotamians regarded the consumption of bread and beer as one of the things that distinguished them from savages and made them fully human." Such civilized staples not only demarcated their orderly life from that of hunter-gatherers, they also served a key role in their culture's unifying mythology.

Furthermore, Standage notes, Sumerian iconography often shows two people sipping from waist-high jars through reed straws. The earliest beers were consumed in a similar fashion because technological limitations prevented baking individual cups or filtering the beverage. But the Sumerians had the pottery skills to make such cups and filter the dregs. That they kept the tradition suggests that they valued the camaraderie brought by the experience, a sign of communal hospitality and kinship.

The ancient Greek's similarly used alcohol as a means of maintaining social and political relationships — though their drink of choice was wine.

During symposiums, upper-class Greek men would gather for a night of drinking, entertainment, and social bonding. In Alcohol: A history, Rod Phillips notes that symposiums were serious affairs where art, politics, and philosophy were discussed throughout the night and could serve as rites of passage for young men. (Though, music, drinking games, and sex with prostitutes may also be found on the itinerary.)

Of course, we can amass social capital without resorting to alcohol, which has been known to damage social relationships as much as improve them.

In the 17th century, London's coffeehouses stimulated the minds of thinkers with their caffeine-laden drinks, but also served as social hubs. Unlike the examples we've explored already, these coffeehouses brought together people of different backgrounds and expertise, unifying them in their pursuit of ideas and truths. Thus, coffeehouses can be seen as the nurseries of the Enlightenment.

Relearning ancient lessons

The Field Museum archaeologists hope their research can help remind us the importance social institutions and cultural practices have in creating our common bonds, whether such institutions are BYOB or not.

"This research is important because it helps us understand how institutions create the binds that tie together people from very diverse constituencies and very different backgrounds," Williams said. "Without them, large political entities begin to fragment and break up into much smaller things. Brexit is an example of this fragmentation in the European Union today. We need to understand the social constructs that underpin these unifying features if we want to be able to maintain political unity in society."

So, grab a beer or coffee or tea, spend some time together, and raise a glass. Just try not focus too much on whether your friend ordered Budweiser's swill or an overpriced, virtue-signaling microbrew IPA.

Keep reading Show less